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Science journalist Julie Rehmeyer was so sick she sometimes couldn’t turn over in bed. The top specialists in the world were powerless to help, and scientific research on her disease was at a near standstill. She was running out of money. And she was all alone, with no one to care for her.
Having exhausted the plausible ideas, Rehmeyer turned to an implausible one. She followed the advice of strangers she’d met on the Internet. They struck her as crazy—but they had recovered from chronic fatigue syndrome as severe as hers. Leaving behind everything she owned, she drove into the desert, testing the theory that mold in her home and belongings was making her sick. Stripped of the life she’d known and the future she’d imagined, Rehmeyer felt as though she were going to the desert to die.
But she didn’t die. She used her scientific savvy and investigative journalism skills to find a path to wellness—and uncovered how shocking scientific neglect and misconduct had forced her, and millions of others, to go it alone. In stunning prose, Rehmeyer describes how her illness transformed her understanding of science, medicine and spirituality.
read my essay in O Magazine, based on the book
Reviews
— June Sawyers, Booklist
— Meghan O’Rourke, author of The Long Goodbye
— Joan Borysenko, New York Times bestselling author of Minding the Body, Mending the Mind
— Nancy Klimas, Director of the Institute for Neuro Immune Medicine and Professor of Medicine at Nova Southeastern University
— Dave Asprey, New York Times bestselling author, author of Head Strong, and producer of the film Moldy
— Pamela Weintraub, author of Cure Unknown and commissioning editor at Aeon
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Interviews
Get the prologue of Through the Shadowlands for free with my newsletter.
Related Press:
O Magazine essay based on the book
STAT News article about changes in the CDC treatment recommendations for ME/CFS
STAT News article about PACE
Business Insider on PACE
Science of Us on PACE
WHYY radio interview about PACE
A piece about my STAT News PACE piece, in Spanish